On Thursday October 7th, me dear dear friend, Alexa Simmons, lost her battle with EDS and all that comes with it. She was only 22 years old. She had been in the hospital fighting off infections and contracted meningitis and shortly went septic. She was doing great earlier in the week and was upbeat and positive like she always is, even on Thursday afternoon she was doing well. Something happened that evening and she ended up going into cardiac arrest. Her body couldn’t take it anymore and she passed away late Thursday night.
Along with EDS, Alexa also suffered from Autonomic Dysfunction, Chiari Malformation, Seizures, and was having blood clotting problems. Her fight was a long and hard one.
Alexa was one of the strongest people I know. She never complained, no matter how bad things got. She was always upbeat and positive and had a smile on her face. She was there for me when I was starting my journey in finding a diagnosis for myself. She helped me through the roller coaster emotions that come when you finally get that diagnosis and understand what it entails. We laughed together, we cried together. I take solace in knowing that she is no longer suffering and no longer in pain. I will miss her greatly and she will be in heart always.
Alexa was a profound young woman taken from this world to young. Everyone I speak to who knew her all said the same thing as I did. She always had words of wisdom far beyond her years. RIP Alexa
My condolences
Alexa is a soul who had an awesome attitude, always cheerful, was wise and never complained at all. the light in her soul will always shine through. Will always be remembered specially in my life.
The more I read these — the more I realize that Alexa was not just our little girl — she was a treasure for the world — all of the amazing things she did in her short time — thanks the nice words … although they make me cry a lot …it causes me pause in this magnificent child we raised and the great love that o many had for her over the years — thanks from the bottom of our hearts — Love – Scott, Angie, Liz
Alexa surely was a treasure. She’s been an inspiration to so many of us dealing with chronic illnesses. I just love her and her spirit. I could go on and on about Alexa and how wonderful she is. Seeing all the wonderful things people have said about her really helps in coping and saying my blessings to her. She touched so many lives. By the way, this is Kerrilynn from Facebook if you didn’t know already. Take care of yourselves. You will always have a friend in me. <3
I published the autobio article that Alexa wrote for those who want to read up on my dear special daughter … http://http://jottify.com/works/being/
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