Living life with multiple chronic illnesses…. and some other stuff!

Monthly Archives: June 2008

So I’ve decided to make a Zazzle Shop along with Etsy. Zazzle will be for my photography… to be put on notecards, posters, prints, etc. It’s a really neat thing… I’m currently in the process of making business cards for myself, don’t have the money yet to order them. You will find the link in the LINKS section of this… whoot.


This picture doesn’t do these flower bushes justice… If you were there you’d have thought they twinkled and faeries lived in them…


She was looking for pretty rocks, and I stole a picture!

This is my favorite part of the day!


My friends rock!
Ocean kayaking… I wish I were strong enough, but hey, it was too cold for me anyway πŸ˜‰
This is what I did once I realized the water had beaten me back to the sand. I colored in my friend’s tattoo…

This was an absolutely gorgeous beach.

The water was way too cold for me. I tried. But the cold did me in.

Following the leader….

Anyway, the past few days I have been feeling artistic, so I went for a walk and took some pictures of these adorable guys. A house down my street has the cutest garden set up with little creatures like these all around. She even has a swinging gnome from a bush (I also have a picture of that). I have been practicing my painting, I don’t know if I like how it’s coming out, but I guess that’s why they say to practice…

Seems, though, that I tried to do too much in the last few days because I subluxed my shoulder, yes… indeed. It hurts… not as much as last night, but still hurts quite a bit. I wanted to get this post up, but now I am going to sit carefully on the couch, hook up my TENS unit, and work on the Twilight Series by Stephanie Meyer (even though it’s young adult, it’s AWESOME.)

I want to start posting some pictures… I’ve looked at a bunch of the 365+ projects and think it’s really cool. Unfortunately I can’t promise a picture every day… so, I’ll post a picture when I can.. πŸ™‚

This is one of my favorite summer hangouts–McCoy Stadium. We were lucky enough to score some free tickets via our dear friend, Kat. Whoot, to Kat!

…is a VERY dangerous thing. The other night I stopped into Barnes & Noble to see if a friend was working… she wasn’t, so I hung around and ‘browsed.’ Ended up walking out of the store with the first two books in Stephanie Meyers Twilight series, Atonement, Living Buddha, Living Christ by Thich Nach Thun (I’m sure that spelling is wrong), Equal Rites by Terry Pratchett, Ladders to Fire by Anais Nin (of which I am currently reading, and loving), and Black Spring by Henry Miller.

As if that weren’t enough today I went to get my hair cut and had an hour to kill… so, I spent money. Chuck Palahniuk’s Snuff, S.J. Salinger’s Catcher in the Rye, The Tao of Pooh, Mark Z. Danielewski’s House of Leaves (one of the best books ever written!!!!), The Secret Garden, & The other Boelyn Girl. As well as getting these books I also got 2 really cute headbands…. I suppose that’s moot considering the money I spent on books. Oh and I also got an all natural face mask from LUSH. My new favorite bath products store.

This seriously could be one of my worst spending sprees… I don’t want to think about how much money I spent.. I will just revel in the fact that I have these fabulous books and talk to my therapist about my spending issues… haha.

The book I’m currently reading… painful for me to get through. I mean really, no one’s relationship is as sticky sweet and end-of-a-romantic-comedy-like as the main character’s. Puh-lease. Also, there’s no depth. Yes, I know I got into this for some light reading, a little fluff… but, come ON. I’m now half-way into it and it’s gotten no better. The author’s writing is flighty. Thankfully I got this book at the library and didn’t pay for it… I’m moving on. Going to the complete opposite end of the spectrum… ok, so maybe not polar opposites, but definitely something with depth. Anais Nin! I’m starting Ladder to Fire, it’s not a very long book, therefore it will be a nice break before getting into something else.

It’s been a little while since I’ve posted. Haven’t had the energy to do so. I’m stuck in a whirlwind of getting my shit together for dr’s appts, disability, unemployment, and student loans. Along with coming to grips with the fact that I have a body that is failing me structurally, I’ve been having cycles of depression and positivity… not exactly manic-depressive, but days like… ‘whoot, I got something done’, or ‘fuck, my body isn’t listening and I will never be able to work again.’ I’m getting there, though. Accepting this crap, that is. I’ve been told by many that I have been handed a crappy hand, but that I’m dealing pretty well. I’m trying to stay as positive as I can. I met with a Disability Lawyer, presented my case, and he said that it sounds like I could be approved and to go ahead and apply. So I did that today. Got all my paperwork together, letters from drs (except the one from my primary which arrived 3 hours AFTER my meeting), letters from friends, clinical notes from the geneticist, symptom impairment worksheet… everything I could possibly do to prove my case. Everything is going to be processed and hopefully I will hear back sooner than later. The lawyer said to give him a call when I found out what the decision is, and if I am denied then we’ll go from there. So that’s that. It’s done for now. I can breathe a little bit. Meanwhile, I am trying to get into the pain clinic and somehow the referral has been lost. WTF, man? Waiting to hear back on that.

Other things… I’m trying to learn watercolors… Neil’s mom is helping me out, giving me pointers, stuff like that. She’s an amazing artist, and I’m so jealous. I’ve also joined a Chick Lit book club. Ha. Right now we are reading The Names My Sisters Call Me by Megan Crane. I’m 5 chapters in. I have to say… the story isn’t horrible, but I am having a hard time with the author’s style. The main character often goes into thought/rambling sequences and seem out of place. Hopefully it will get better.