October 13, 2008
It’s been a couple of weeks since my last post. So Sorry everyone (well, those that actually read this… haha). As usual things for me are hectic. Doctors appointments, Occupational and Physical Therapy, Weddings… sigh. Soooo….. UPDATES!
When I went to my rheumy appt I brought up the dry eyes and dry mouth issues and mentioned that the optho told me I have practically no tear film and to ask about Sjogrens. Well, he agrees. Awesome. Bring. It. On. I use Biotene mouthwash and toothpaste, Systane drops through out the day, and Systane Gel at nighttime while I am sleeping. Systane = Love.
I had a re-evalutation with OT, and I haven’t gotten any better. It’s been 2.5monts. We decided that our time may be better spent working on adaptive techniques. I got a foamy tube to put on my paintbrushes, pencils, and other writing utensils. Using vetrap or coban to build up others. Will be getting an awesome knift that is T shaped and rocks (and coincidently looks like a ninja weapon… rock on). My finger splints should be in soon, those are going to make such a difference, at least I hope so.
PT, however, I feel is pushing me too hard. OT gets that EDS is degenerative and that a lot of things are very day to day. PT says that I am going to have to push through some of the pain… sure, I do get that, but sometimes I am in just TOO much pain. Other times I sublux something from pushing too hard. My left leg is now rotating inward when I put weight on it, clearly I’m not getting any better. Sigh…
I see a new pain specialist on the 22nd. This place is actually around the corner from me. Whoot! Hopefully they will have some advice for me. Or a decent treatment plan… something.
Fun stuff! I finally finished the Twilight Saga. I have to say, I’m not sure I enjoyed the last book as much as the first three. Maybe because I knew it was the end… or that it was really predictable. I don’t know. I still enjoyed it though. I am also starting my Christmas Presents. Yea, I know it’s still October, but if I don’t start now, they will never get done. I’m making most, if not all, my presents this year. I don’t have a lot of money, but I do have a lot of fabric/yarn/embroidery stuff. I’m working on a crewel embroidery project right now, and it’s so much fun. It’s easy to do and not too hard on my hands. Definitely a plus.
So, that’s it for now.