Living life with multiple chronic illnesses…. and some other stuff!

Monthly Archives: January 2009

*Insert eye roll here*

So, since it had been five days after my fall and I was still in pain, mom made me promise ti go to the ER.

after almost 10hr there, this is the result:

my elbow most likely subluxed and went back into place. Not ver surprising. Dr said it most likely ver bruised. She does suspect a fracture in my wrist that can take up to ten days to sow up. So, I have this nifty splint/cast thing till I get new xrays done on friday… sigh.. this is all i have the energy for at the moment. Man, it was a very long nighr…

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So, this blog is going to be full of whining and bitching. You have been forwarned.

On monday I slipped down a few (4/5) stairs and landed funny-y’all with EDS or a Chronic Pain condition knows what such a thing can do to you– mostly on my elbow and wrist on the stair railing. It hurt, so I planted myself on the couch with Lido patches up and down my spine and SI joints… (I’m little it doesn’t take much, I only had to use two). Iced my elbow and wrist. Ya know, the normal RICE protocol. Went to bed, woke up the next morning with my hand swollen… and i was like, oh crap I forgot to wear my wrist splints… until neil looked at my hand and arm and went “holy shit.” My entire arm from elbow to finger tips was swollen–I never swell. This was so swollen that you couldn’t see my wrist or and of my ligaments or bone indentations (like I said, I’m little and my bones are fairly prominant). Again… Ice on and off, 20min intervals. Burning, prickling pain from the swelling impinging a nerve, I suppose. I had petichiae all over, still do, but not as bad. So, two days of icing and not using my arm the swelling finally went down. It still hurts, but I can handle it. I think it must of subluxed or something, and caused a muscle/tendon sprain/strain…. whatever.

To add to the excitement I just now dislocated my big toe walking down stairs. WTF STAIRS.

I swear, the next place we move to is going to beall one floor.


So until I get my butt in gear and really work on my own website, I have devoted a separate blog for just my art.

Check it out. Subscribe. There will be more to come.

It’s sure has been quite some time since I’ve last posted.   Things have been absolutely crazy on my end.  Still trying to figure out a good pain management.  So far: Ultram ER 300mg, Ultracet 37.5 every 4hrs as needed, Neurontin 300mg 3x Daily, Cymbalta 60mg, Valium 10mg every 4hrs as needed, Ambien 10mg at night (and I still don’t sleep more than a few hrs between the neurontin, ambien, and valium).  I’ve changed PT’s because the first one was pushing me too hard and I ended up hurt after every session.  The new guy was really good.  Was with him for about a month and a half–then, no insurance.  That’s right.  I don’t have medical insurance anymore.  

After a day of freaking out and sobbing about what will happen, neil, my mom, and my shrink, came up with a game plan.  I am working with a lawyer who is taking care of all the paperwork, even the medicaid that is separate from SSDI.  I am so grateful that he is offering to do everything  for me.  
I contacted my primary care physician and explained to her my situation, she said that she will talk to both my psychiatrist and my pain dr, to work on a better pain management that won’t interfere with my psych issues.  She also said that for the brand name meds I could get samples.  The generic stuff I could go to walmart, they have the $4 dollar script program.  I think Rite Aid also has a program (that’s where all my stuff is, and they know me).  
My Shrink is going to work something out  for me.  Phone sessions for a bit, until I figure out my financial situation and if I need to come in to see her she’ll give me a decreased flat rate.  It sounds doable.  Especially if I get the state program stuff to come in.  The only other issues I’m worried about is the pain dr and my psychiatrist visits.  
Hopefully, things will go through quickly and hassle free, but anyone who has had to deal with the system, it takes forever.  I refilled everything that I could refill before I lost the insurance. At least for that.
As for some more upbeat things, I am really wanting to get back into art.  I think I’m going to make a new blog that is strictly for my artwork, until I get my own website up and running.  I joined a website with many tips and advice for anything art related.  The people there are very helpful and encouraging.