Living life with multiple chronic illnesses…. and some other stuff!

Monthly Archives: September 2010

… The person never gets back to you? Let’s recap.

This summer has been really tough health-wise, especially with my dysautonomia. These hot, muggy days are causing my blood pressure to drop and my heart rate sky rockets in order to compensate. I’ve been drinking lots of gatorade and trying to eat as much salt as I can, however, it’s not enough.

I have had some autonomic testing which showed that my nerves, themselves, aren’t damaged. This begs the question of the dysautonomia being caused by mixed chemical and hormonal signals in my body. I had more blood drawn to see the levels of a few hormones and neurotransmitters, which may tell if there is a problem with my adrenals (which is very common in people with autonomic dysfunction). It’s been almost 3 weeks and I haven’t gotten the results, which I asked for copies of three times, nor has my doctor returned ANY of my phonecalls about what to do next. He wrote a ‘script for Provigil for me to try, well, turns out that insurance won’t pay for it. Ok, that’s fine, but what are we going to do next? I am getting really frustrated with this situation and this was the doctor that was supposed to actually be able to help me. I don’t know if it’s the office’s lack of communication or what. What would you all do? I think I’m going to call my primary on monday to see what she has to say about it.

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