I can picture it.
The different sections of my spine, my ribs, pelvis, etc. all sitting around a table arguing. Why? Because they hate each other.
At least that’s what I think is going on.
My cervical spine seems to be pretty set on separating itself from both my skull and my thoracic spine. The thoracic spine desperately wants to be independent of my ribs and causing all sorts of raucous about it. My lumbar spine hears all this noise and arguing going on upstairs and wants out. Just plain out from all of it. Then we have the pelvis which is just about reading to implode on itself.
All I want is for everyone to shut up and just play nice with each other.
Is that too much to ask? Is it??
This whole dysfunctional spinal family scenario was inspired by a thread of fellow EDSers experiencing this very same phenomenon in which they aptly described as “Divorce.”
They were right in the whole idea. What goes on in my body feels like a giant family reunion gone very, neurotically, physically, violently wrong. What I don’t get is, why is it so hard to find a decent person who understands roughly what goes on with EDS to make an appointment? I’ve been given handfuls of names and numbers. I’ve called them all. Some say that I have to actually have some sort of surgical diagnosis to see a spine specialist or I have to wait until March. MARCH????? Really? I understand that there is a shortage of doctors. I understand that they are in high demand. What I don’t understand is what do we do while we are waiting five or so months to see someone to tell us something we already know, then send us off to someone else?
I am so very tired. I am considering getting my own patient advocate or caseworker.