I have been having some problems regarding my spine and went to see the Spine Specialist on Thurs. He reviewed my xrays and from that he found osteoarthritis of the neck, bone spurs, and thinning of the vertebra. He also noticed that my facet joints (the joints that stop the spine from rotating too much), are very wide and loose, which means my spine is, in fact, rotating to much and is probably what is causing all the pain. From the over rotation the ligaments between and around the facet joints are inflamed. Unfortunately, there’s nothing that can be done about it aside from nerve blocks, which only last about 12-24 hours for EDS patients, or nerve ablations. If I did opt for nerve ablations I would absolutely have to wear full neck-to-pelvis bracing at all times. As of right now, I could still take it off when resting. My next step is getting to an orthotist, or brace person, to be fitted for new braces.

Ok, so what does this mean? Well, the osteoporosis is getting worse. My bones are very thin and are shaped like bow-ties instead of rectangles, at least in my neck. I am going for a bone density scan some time in the next few weeks, and depending on the outcome I may be starting on Fosamax or Boniva, or something similar. The really sad part about this is there is no way I would be able to carry or deliver a baby with the state of my bones. I am heart broken over this. I have always wanted to be a mother.

The arthritis and bone spurs will continue to get worse and may impinge on the spinal cord, when and if this happens I will most likely have to have surgery to scrape away the spurs.

As far as the facet joints… I don’t know. From what I’ve been told there is nothing that can be done about it, and it will continue to get worse. I will become more and more dependent on the braces and my wheelchair.

Hearing all of this was like a slap in the face. I knew there would be some problems, but I thought I would have more time before it got this bad. Basically, I have the spine of a 65 year old woman.

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