Living life with multiple chronic illnesses…. and some other stuff!

Monthly Archives: February 2011

It’s 1:11am…  I just finished a jewelry project that I am excited about! Whoot!!!  However, the overwhelming nausea and stomach pain is keeping the smile from coming to my face. Even though I really am happy about finishing a project, I can’t enjoy it because I feel like crap.  That’s how it’s been for me for years, except… now it’s all intensifying.  I can’t sleep because I have cold sweats, I’m nauseous, I’m in pain and there is nothing I can do about it.  Meds aren’t helping.  Is it sad I am actually looking forward to getting these tests done?

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I have a few decisions to make regarding my health.  They aren’t easy decisions to say the least.  I’m not comfortable disclosing everything, but I do want to share some of it so that you all know what’s happening with me.  The biggest issue  is that my gastrointestinal system is shutting down starting with the colon.  From what can be seen from the tests I’ve done is that my colon is at least partially paralyzed.  I have a few more tests coming up, one being an upper GI series with barium swallow and small bowel follow through.  Put into English, it means that I have to go to the hospital in the morning and drink all kinds of barium liquid then have xrays taken at different intervals of time (which I can’t remember what they are).  This is done to see how things move through my esophagus, stomach, and small intestine and whether or not they are healthy.  After that is a transit study, it’s no big deal really, I swallow a pill with some markers in it that show up on xrays, then go in every second day for 5 days to get xrays and see where the markers are in my GI tract.

The “paralysis” in my gut has gotten so severe that my dr is recommending surgery.  I’m not sure all of what goes on during this surgery and I decided to take it one step at a time and see what the tests show.  If the the tests show that there is an issue with my upper GI system then surgery is out of the question.  Again, because I am taking it one step at a time, we have decided to cross that bridge when it comes.

I’ve also decided to get a second opinion, it couldn’t hurt.  Perhaps there is something he will think of that my current specialist didn’t think of.  I am also calling up my pain doctor and asking why he is so opposed to a pain pump.  See, I take a lot of pain medication.  A few are narcotics, which can have many side effects one affecting the GI system.  Through a pain pump, however, rather than orally, these side effects don’t happen.

For now, I am willing to try whatever I can tolerate in lieu of surgery.  At the moment, I’m attempting a mostly liquid diet to see if that alleviates some of the pain and discomfort.  Let me tell you, it’s hard!  I have to make sure I get in enough calories and nutrients.  Today I started this new regime and by 9pm I was starving!  I ended having an English muffin with some Laughing Cow cheese and that was satisfactory at best.  Sigh….  I hope it’s worth it!