On Thursday October 7th, me dear dear friend, Alexa Simmons, lost her battle with EDS and all that comes with it. She was only 22 years old. She had been in the hospital fighting off infections and contracted meningitis and shortly went septic. She was doing great earlier in the week and was upbeat and positive like she always is, even on Thursday afternoon she was doing well. Something happened that evening and she ended up going into cardiac arrest. Her body couldn’t take it anymore and she passed away late Thursday night.
Along with EDS, Alexa also suffered from Autonomic Dysfunction, Chiari Malformation, Seizures, and was having blood clotting problems. Her fight was a long and hard one.
Alexa was one of the strongest people I know. She never complained, no matter how bad things got. She was always upbeat and positive and had a smile on her face. She was there for me when I was starting my journey in finding a diagnosis for myself. She helped me through the roller coaster emotions that come when you finally get that diagnosis and understand what it entails. We laughed together, we cried together. I take solace in knowing that she is no longer suffering and no longer in pain. I will miss her greatly and she will be in heart always.