Who am I and what am I doing with this blog?
My name is Kerrilynn and I am a young artist living with a chronic illness. I have Ehlers-Danlos Syndrome. It is important to me to raise as much awareness as I can with this rare disorder. It’s been nicknamed the “Zebra Disease” because it mimics so many other illnesses and conditions including, but certainly not limiting to, Lupus, Rheumatoid Arthritis, Muscular Distrophy, Fibromyalgia, etc. It took me (no, not doctors, I had to do the research myself) 25 years to get a proper diagnosis. Until then, I had been treated for Undifferentiated Seronegative Spondyloarthropathy. Yea, say that 5 times fast! Ehlers-Danlos Syndrome (EDS) affects all systems of the body since it is a collagen disorder (remember 7th grade biology? Collagen is the glue that holds the body together). Hence, there are many seemingly unrelated complications and symptoms.
I also have Aspergers Syndrome and dyslexia. Honestly, I don’t feel that it is a handicap even though some things are difficult for me. The opposite of Autism Spectrum Disorder is Neuro-Typical. So really if you think of it Autism Spectrum Disorders are just different levels of Neuro-Deviance. Our brains are wired differently. Sure, there are difficulties when it comes to socializing and communication that can be crippling at times. Those are the bad days, but there are good days, too. It was a relief to me to finally know why I was “different” and why I had more trouble in certain areas than other kids, and now adults. Autism and Aspergers (really Aspergers is just a higher level functioning of Autism) are on a spectrum, there are those that I greatly impaired by it, and those that are minimally impaired, and those that are somewhere in between.
Living with chronic illness and Aspergers is a big part of my life, but it’s not my whole life. Or, at least, I try not to let it take over my life. I am an artist of sorts. I draw, paint, sew, knit, crochet, photograph, and do graphic design. These are the things that help me stay sane! Having this blog is a way to express all these things and show them off mercilessly! As well as advocate for my conditions and myself!