Living life with multiple chronic illnesses…. and some other stuff!

Category Archives: Crafting

Talk about your extreme knitting!


All the more reason to stay home and under as many blankets as possible!  I don’t think I have mentioned this before, but we have a wondering warm room in our place.  Meaning, the warmest room in the house is always different.  Tonight it is the spare room/studio/craft room.  Neil, Shadow, sometimes Kitten Face, and I are camping out in the Wandering Warm Room.

I’m set up on the spare bed with my electric blanket and two afghans, craft bag with my knitting project, a book, a magazine, a sketchbook, and micron pens, lapdesk, and laptop, and will soon be accompanied by a hot cocoa.  What could be better!  The book I have with me is Respect The Spindle by Abby Franquemont (who also has a YouTube channel).  The lovely Sarah let me borrow this book because I have decided I wanted to learn how to spin my own yarn!  Yes, you read right, I have picked up yet another hobby!  I only have a couple of yards actually spun, and it’s not the best looking, but I still did it myself.  I haven’t done very much yet and you know what they say, practice makes perfect!  I’m not looking for perfect, I’ll settle for pretty and someone even… 🙂

Otherwise, there isn’t much to update on.  I am still working on Neil’s socks but am getting close to be almost done.  I have photograph my finished projects for my Ravelry page.  That’s about it!  My hot cocoa is calling me!



First off, I am getting the hang of making “green” smoothies. I have possibly made the best smoothie ever this morning! It’s so yummy. Those of you who aren’t familiar with green smoothies may think it’s a bit weird. Basically a green smoothie consist of a leafy green (the basis of a “green” smoothie), a watery veggie like cucumber or celery, some other veggies if you’d like, and a few fruits. Today’s blend for me was some collard greens, celery, an apple, a banana, and some pineapple. So yummy. The stronger flavors of the fruit mute out the bitterness of the greens. It’s delicious!

Yesterday I went out with one of my knitting friends and met up with another. First stop was the Slater Mill Knitting Extravaganza. So many gorgeous, soft, colorful yarn. Yet also very pricey. There was a raffle table, I bought 6 raffle tickets. I never do, but any one of those prizes would have been phenomenal! Especially the Knit Picks basket of goodies. Alas, I didn’t get a call saying I won… not surprised. lol.

The next stop was to Peter Patchis’ Yarns which is the Mecca for all yarn users!!!  I have pictures but not uploaded yet.  I will soon, I promise.  It’s literally bins and bins of giant spools of cotton, linen, wool, acrylic, and mixed yarn.  They have some skeins as well.  His prices range from 75 cents a skein to $3 -$4 per lb for wool and cottons and blends, and up to $16/lb for mohair and tencel blends.  I walked out with 3 giant spools over 2lbs each.  One is an acrylic/wool blend in a tweed heathered rose color, very pretty!  The other two are %100 cotton, two shades of aqua that I am going to ply together.  I must go back soon!

And finally, our last stop, New To You Too.  It’s a thrift store nearby that has a deal where you spend $1.95 to fill a bag with books.  How ever many books you can fit!!!  I got a bunch of old Reader’s Digest bound volumes, and outdated dictionary, and some other hard bound books to use as art journals, and found Cold Mountain by Charles Frazier which I heard is supposed to be good as a novel.  I loved the movie.  I also found The Poisonwood Bible by Barbara Kingsolver.  I also grabbed a mini mason jar for a project, a pretty pewter votive holder with stars and moons cut outs, and three americana style game board wall hangings.

Over all, I spent about $33!!!!  Frugality FTW!!!

In some medical news, I saw the cornea specialist and it doesn’t look like I have keratoconus or keratoglobus, so yay, but it also doesn’t seem like the majority of my vision loss is true myopia.  Rather, the dryness of my eyes are so severe that I’m continually getting corneal abrasions and irritation.  He said that he has no doubt I have Sjogren’s Syndrome and that around 40% of patients with Sjogren’s actually have negative blood results.  It’s not great news, but better than actually losing my vision.  I got plugs put in my bottom two tear ducts so that my tears won’t drain so quickly and keep my tear film replenished.  I am also on a pretty intense regimen.  Right now I am using OTC preservative-free eye drops 6 times a day, warm compress 2 times a day, flaxseed oil 3 times a day (which I should be doing anyway), and an OTC night gel.  It doesn’t seem a whole lot when it’s typed out, but trying to remember to put the drops in all day is hard when you have basically mush for brains.


In this video I’m discussing anger and letting go of it.  Being my own advocate when it comes to my medical treatment and how important it is for people to be their own advocate.  Lastly, a little show and tell of some finished knitting projects I completed this past week and how it’s sort of therapeutic when it comes to focusing my energy on something positive. I apologize for the audio not syncing up with my mouth…


That’s pretty much what I’ve been looking at for the last few days.  I’ve been having this horrid pressure in my head for the past few days.   It feels like someone is pressing down on my head and gets worse when I sit up and unbearable when I stand and attempt to walk.  I have a feeling it’s a combination of skull and spinal compression due to the laxity of the ligaments and tendons holding the joints together.  It’s also possible that it’s Chiari I Malformation (Arnold Chiari Malformation) where the tonsils of the cerebellum hang through the bottom of the skull and, in turn, cause pressure on the spinal cord.  If it’s still like this by monday time to call the doctor.  Question is, which doctor, which specialist??  I honestly have no idea.  I’ll most likely end up calling the neurologist since he is the one doing all the MRIs.

With that said, I haven’t really been able to do much the last couple days.  Lots of blog reading, web surfing, and Facebook!  I’ve been knitting a bit, but not much to show.   I’m still working on the cowl wrap using the bane of my existence Life’s an Expedition: Tunisian Lights yarn.  This project is never ending.  I am now reminded why I prefer lace patterns.